One in 5,000 people have Hereditary Hemmoraghic Telangiectasia, but fewer than 10 percent have been diagnosed.
Local resident Celeste Farr would like to increase awareness of the disease by holding a Walk-N-Rollathon on the walking trail at McMinnville Civic Center on April 23 from 1-2 p.m. If it rains, the walk will be moved to April 30.
“My son Jason passed away last year and he was struggling with HHT. That was one of the reasons I decided to do this. I’ve been thinking about it for a couple of years, but this is the first year I’ve decided to go ahead and do it,” said Farr.
Farr’s mother, Elaine Vachon, and her daughter, Elaina Farr, also have the condition.
HHT is an inherited disease that affects over 1.4 million people worldwide. It is caused by defective blood vessels in the brain, lungs, liver, nose, skin, and intestines, and typically begins with nosebleeds during childhood. HHT is highly treatable but can result in serious health problems if not promptly diagnosed and treated. There is currently no cure.
Farr hopes this event will help reach some of the 90 percent who have the condition but are undiagnosed.
“The main symptom people have are nosebleeds,” said Farr. “If you say nosebleeds run in our family, then you should get checked because it could be a lot more serious than just nosebleeds. This event is raise awareness in the community and raise funds for the HHT Foundation. They do research and community awareness as well.”
Individuals interested in participating in Walk-N-Rollathon are encouraged to pick up a sponsorship envelope at one of the following sponsor locations: Citizens Tri-County Bank, The Hope Center of Warren County, Highland Rim Music & Firearms, Collins River BBQ, Juicy’s Wellness Café, Topz Frozen Yogurt Café, The Outdoor Shop, Underwood’s True Value Hardware, Moore’s Office Supplies, and Benji Songer Logging.
Participants are invited to bring strollers, wear rollerblades or roller skates, or just a good pair of walking shoes during the event.
For more information, Farr can be reached at 931-314-4789 or at CFarr4kids@yahoo.com.